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KMID : 1102120210270010075
Child Health Nursing Research
2021 Volume.27 No. 1 p.75 ~ p.85
Parenting experiences among fathers of prematurely-born children with cerebral palsy in South Korea
Park Ji-Sun

Bang Kyung-Sook
Abstract
Purpose: The symptoms and impairments caused by cerebral palsy usually require long-term treatment, resulting in a substantial burden on the family of affected children. This study explored the experiences of fathers with prematurely-born children with cerebral palsy, with a focus on how such experiences influenced their families.

Methods: A qualitative case study method was used. Nine subjects were recruited from April 2018 to June 2019 at one hospital, and each was interviewed three times by a neonatal nurse.

Results: Five core experiences of fathers were identified: ¡°regret for an insufficient initial response¡±, ¡°confronting my child born as a premature baby¡±, ¡°the position of being a dad who can¡¯t do anything¡±, ¡°the process of treatment like a tunnel with no exit¡±, and ¡°a father¡¯s getting meaning in life through children¡±. These stories covered an individual¡¯s timeline and family interactions.

Conclusion: Our findings suggest that fathers of prematurely-born children tend to suppress their emotions; therefore, a novel intervention program to encourage fathers¡¯ emotional expression and to support healthier interactions with their families is needed. Moreover, our findings could contribute basic information for the construction of a community-based support system to aid families, including prematurely-born children and other persons with impairments.
KEYWORD
Premature infant, Cerebral palsy, Fathers, Parenting, Qualitative research
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